What worried my family the most.
Twenty years ago, I got diagnosed as having Ehlers Danloss syndrome; to me, it came as no shock as I'd suspected something was wrong with me for many years.
What concerned my family the most was the ease with which I accepted the news; I didn't need to go through the five stages, I went from why me to Okay I've got it in as many seconds as it takes to read the words. I think they were expecting me to have a time of crisis knowing I had a disease that is incurable and would put me in a wheelchair. I'd accepted my health issues would put me in a wheelchair many years earlier.
The question I got asked the most is how do you feel knowing you have EDS?
My reply is giving my illness does NOT change a thing about me; I am the same person I was before I knew what I had and will be the same person now knowing what I have, why does knowing the name of my illness change how I feel?
Shortly after the news, I decided to fight the war on my terms, and go down fighting rather than sit in a corner cringing; it is only last year, that the EDS took a hold on my life in a harsh way.